Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.

View Abstract

AIM

To evaluate patients' expectations regarding the perceived utility of whole-genome sequencing (WGS).

MATERIALS & METHODS

We used latent class analysis to characterize individuals enrolled in the MedSeq Project based on their perceived utility of WGS. Multinomial logistic regression was used to evaluate associations between participant characteristics and latent classes.

RESULTS

Findings characterized participants into one of three perceived utility groups: enthusiasts, who had a high probability of agreement with all utility items (23%); health conscious, who perceived utility in medically related areas (60%) or skeptics, who had a low probability of agreement with utility items (17%). Trust significantly predicted latent class.

CONCLUSION

Understanding differences in perceived utility of WGS may inform strategies for uptake of this technology.

Investigators
Abbreviation
Per Med
Publication Date
2016-01-08
Volume
13
Issue
1
Page Numbers
13-20
Pubmed ID
27019659
Medium
Print-Electronic
Full Title
Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.
Authors
Lupo PJ, Robinson JO, Diamond PM, Jamal L, Danysh HE, Blumenthal-Barby J, Lehmann LS, Vassy JL, Christensen KD, Green RC, McGuire AL,